Monday, March 16, 2009

"Do Not Conform Any Longer to The Pattern of this World" Romans 12:2



When Ivan was about 4 months old, I began to question a few things that he was and wasn't doing. He would startle easily, which is normal for a newborn up to about 6 weeks old, but not much older than that. Also, he was far from trying to roll over, which at 4 months is when babies at least began to practice or start to strengthen their muscles in order to roll over. I would spend hours on the internet trying to figure out if I was crazy or if I had legitimate concern. My answers always came out 50/50. I could do nothing else but pray about it & trust in God, for He was the only one who knew how genuinely concerned I was. I did not want to tell anyone for the sake of "speaking it over Ivan."




At the beginning of his 6th month, he was still not rolling over. When he had his 6 month check-up with the doctor, I asked the doctor about it and he pulled his legs and then poked them, saying "everything is fine." His doctor never asked questions about his development, or anything else for that matter, but I wanted to believe him so badly that I went with it. When I arrived home that day I began to do more research on the internet, I was able to find some exercises to do with him that would strengthen his muscles & motivate him to roll over. By the end of his 6th month he was rolling over! Praise God, He knew I needed that. I believed that this was God's way of saying "trust in me, Ivan is beautifully, wonderfully, & perfectly made."




Everything seemed to be going okay, Ivan was eating solid foods 3 times a day, sleeping 12 hours at night, and rolling from one side of the room to the next as happy as can be. I still noticed a few "off" things about him, such as flapping his arms, being extremely scared of new things or places, and vomiting at least 4 times a week. Time went by so quickly & now he was nearing the end of 7 months, this is when I realized he should probably be doing more than rolling around by now. To the internet I went, only to find out that most babies have been sitting up unattended since 6 months & are beginning to crawl by 8 months. I was able to find, once again, ideas on helping baby meet these milestones. I wanted to believe that Ivan was just a slower developer than most, but deep down I felt there was more to it. I took my thoughts & fears to God & just waited on Him. Ivan did sit alone by the end of his 8th month & he began to "army" crawl at 9 months. All very good signs that I am overreacting. His 9 month check-up went well, he got his shots & his doctor didn't say anything was unusual so I didn't ask.




Over the next 3 months the only thing that changed was how many times he would vomit in a week. He went from vomiting 4 times a week to 6-8 times a week. I was able to add 1 more thing to my "off" things list, gagging on textured foods the minute they touched his tongue. I can understand gagging when trying to swallow or move the newly textured food around his mouth, but not from just sitting still on his tongue. And everytime he would gag it turned into "vomit fest," whatever he had eaten within the last 12 hours would come up. Once again, I began many hours of research, but this time it left me more scared and worried than I was to begin with. It lead me to "sensory disorders", which is part of the autism spectrum.




Finally we were able to switch doctors, I know that God planned for us to go to the very doctor we chose, Dr. Mitchell. Needless to say, Ivan's 12 month check-up didn't go as well as the others. 1st Ivan was weighed in, at 18.6 lbs, which is extremely low for his age. His weight, compared to every child who is 12 months old or once was 12 months old, on a chart ranging from 5% to 95%, came in at 3%. It wasn't even on the chart! Next I was given a questionare to fill out about Ivan's development, I was scared to answer honestly b/c he was still doing the army crawl, but I knew I had to! The last thing done at this appointment was his vaccinations. The standard amount of vaccinations given at a 12 month visit is 5, but Dr. M does not like to give them all at once. She gives 3 at one time & the final 2 a few months later.



The discovery of Ivan's low weight led to bi-weekly doctor visits for about 6 weeks, in which he would gain a few ounces, lose a few ounces, and so on. Over those 2 months he pretty much stayed the exact same weight, which is why Dr. Mitchell referred us to Dr. Enemuo, a GI specialist at Children's Hospital. We were able to get our 1st appointment with him about 3 weeks after the referral, which is amazing considering the average appointment time is 2 months. During the 1st visit with Dr. Enemuo, which my mom so lovingly offered to go with me (thanks mom), Ivan was given a nutrion plan, about a dozen blood tests, and a urine test.... after 1.5 hours of waiting for Dr. E to enter our room, it only took 2 more hours of waiting for Ivan to finally pee! All of these tests came back as normal, which was great to here, but it meant we had to go back for more tests. A month later we are back at the hospital for an EGD and a reflux test, which meant an overnight stay. Once again, everything was normal, praise God, but I almost wanted him to have reflux just so we could have a "fixable" answer to the problem. My main prayer at this point was for God to give me the strength, wisdom, and peace I needed during these hectic times.




Upon reading my answers on the developmental quesionare, Dr. M referred Ivan to Early Steps. Early Steps is a program which involves speech, occupational, and physical therapists working with kids until they feel they are developmentally "age appropriate." Ivan was 13 months when we had our 1st introduction to Early Steps, which involved an "assessor" coming to our home to see if Ivan qualifies, and if so, in what areas. This meeting was like Satan beating me over the head with a hammer... the word "autism" came out once again, I was told to ask my dr. to refer us to a neurologist, and the words "brain bleed" were used. After this meeting, I went straight to the computer to research everything this lady had said Ivan may possibly have. I found so much information, with the realization that Ivan does have quite a few of the symptoms of autism, but no way in hell will I accept this to be true. I kept it between me & God, which was really hard because it sat in the back of my mind, scaring me more on some days than others, but my God continually reassured me that Ivan was perfectly made. I didn't know if that meant he was perfectly made with an ailment that God would give me strength to handle or if all this was just fear brought on by the medical world. Regardless, I quickly set up prayer requests & play dates. I wanted to get Ivan around other people hoping he would catch on to things they do that he doesn't catch on to when I do them. We went from having a completely open schedule to having one day a week open. Along with what seems like weekly doctor visits, he has therapy 3 days a week and 3 play dates a week, one at my mom's, one with a play group down the street, and one at church.


The thought that Ivan may have any kind of ailment was really hard to handle, I felt so helpless & I was beginning to get angry at God. During this time period I didn't talk to God for about 10 days, which only made the feeling of helplessness stronger and I began to be depressed. It was as if I was walking around under a dark cloud all day. I wanted to do whatever possible to help Ivan, as the person responsible for his life, and I couldn't do anything. Finally I snapped out of it & ran to God for help, which was the most comforting experience, I still get tears thinking about that moment. His question to me was "Did you really think I would have you fight as hard as you did for your husband's life, your daughter's childhood, and your future, to let something like this happen? Ivan is perfectly made in My image, put your faith in me." His comfort and compassion and love for me, Ivan's mom, really can't be described, I'm still speechless. It's as if God said 'I'll take care of Ivan, you need to relax, take a break.' And what a burden to be taken away!




Ivan qualified for all 3 therapies once a week, and within 2 weeks he began crawling correctly, lifting his stomach off the floor. Within 1 month he began to pull up to standing on everything that is tall enough, pointing his finger to what he wants, and moving his jaw when eating, although still baby food. Therapy, along with his busy "play" life, definately seemed to be helping.


I was waiting until after our 2nd visit with Dr. E, the GI Dr., to schedule Ivan's 15 month appointment with Dr. Mitchell so we could discuss the test results. It wasn't until Feb 26, 5 days before Ivan was 16 months, that we made his 15 month appointment. The few days leading up to his appointment I felt like I should research vaccinations. This was during Mardi Gras, which was a crazy week, with Juliana being in a Krewe and having to participate in all the activities, so I didn't have the time to research. Not only that, but I had already done research before Ivan was born. I had decided to get the vaccines I just wanted them to be split up (one of the reasons I know Dr. M was who God wanted us to go to, she split the shots up to where God had enough time to get my attention before I ruined Ivan's life).


14 hours before Ivan's 9am appointment, I was on my way to bed, and then I felt like I had to go look up this vaccination info. I talked myself into it and boy am I glad I did. What I found was unbelievable. It is mind blowing! I know it was God who prompted me to go read this information. I couldn't even find the sites that I had researched before Ivan's birth, God took me right to the sites I needed to see. Once again, God has saved another life in this house, we are truly blessed, God's little "miracle family." Ivan was due to have the MMR vaccine and the DTAP vaccine, these were 2 out of the 5 that Dr. M decided to wait to give until 15 months. 80% of children diagnosed w/autism are diagnosed within 30 days of the MMR vaccine! Here are just some of the mind blowing facts that I found in my research of vaccines: (I have added a few of my own words to help make sense of all this in green)


1)http://members.jorsm.com/~binstock/mmr-immu.htm - (the main point I got out of this is that the MMR vaccine is the "fuse to a bomb" ...BOOM, full blown autism, in those children that are showing even the slightest effects from previous vaccines) Here is a not too technical summary. Consider the kids who plunged into autism within days or weeks subsequent to a vaccination: The causal link between the vaccination and the onset of autism (in somecases) may well have been the background presence of latent CNS-infection (ie,already in place, dormant) by one of the herpes viruses, already in residence in autism-related parts of the CNS when the vaccination occurred. (Babies are given herpes vaccines w/in 24 hours of birth and then another 4 times before they turn 1 yr!) The vaccination (eg, MMR) will induce a high level of prolonged cytokinesrelease. Some of these cytokines (eg, interferon gamma) (IFN-g) can lead to MHC-I expression in those neurons. Temporal lobe neurons that had already been latently affected with HSV would then present small HSV-related proteins -- eg, in MHC-Imolecules now present on the neurons -- because the MHC-I expression was induced by the IFN-g that had been induced by the vaccination. The neurons likeliest to die would those that had already acquired a subacute,non-viremic, latent infection with HSV-1 or HSV-2. Thus, I've come to believe that a small subgroup of autistics whose autism was late-onset, in temporal association with vaccination, may have had a "subacute, latent HSV CNS infection" as the causal link between the vaccination and the occurrence of autism. Thus, the immune deficiency may, in some kids with autism, have been the result of pathogens including HSV that had become latently embedded in neurons of the temporal lobe -- just waiting for the fuse to be lit, the vaccination's IFN-g (in MMR) release being the fuse; the embedded virus, a bomb about to explode; onset of autism the result...


2) http://members.jorsm.com/~binstock/vin.htm -to sum up what I got out of this link is that when baby/child gets fever after vaccines they are at a higher percentage than other children to be effected by vaccines resulting in autism, ADHD, obsessive compulsive disorder, and taurette's. Ivan would get a fever that sometimes spiked to 103.3 degrees, doctors say this is normal, when it may really be a flag to cause further looking in to. Based upon the facts (i) that fever is a vaccination reaction experienced bymany individuals (9), and (ii) that fever and edema are stimulated by similarcytokines (34, 43, 57), a subset of vaccinated children -- as a direct result ofvaccination-induced cytokines release -- may be likely to experience bothencephalitis and subsequent encephalopathy.3. For instance, recent research findings are instructive regarding autistic children for whom -- as neonates, infants or toddlers -- medical records show a history of infections, antibiotic treatments, vaccinations, and temporally associated onset of autistic traits (eg, 3, 15).


3) http://www.whale.to/vaccines/generation_rescue__june_26,html.htm - here are the results of a survey done by an independent organization:
All vaccinated boys, compared to unvaccinated boys:
-
Vaccinated boys were 155% more likely to have a neurological disorder (RR 2.55)
-
Vaccinated boys were 224% more likely to have ADHD (RR 3.24)
-
Vaccinated boys were 61% more likely to have autism (RR 1.61)


Older vaccinated boys, ages 11-17 (about half the boys surveyed), compared to older unvaccinated boys:
-
Vaccinated boys were 158% more likely to have a neurological disorder (RR 2.58)
-
Vaccinated boys were 317% more likely to have ADHD (RR 4.17)
-
Vaccinated boys were 112% more likely to have autism (RR 2.12)


4) http://www.whale.to/vaccine/points.html - "It was my responsibility to do professional fee abstraction for the ER at Children's Hospital of Philadelphia in 1997, and for 15 months reviewed an average of 150 pediatric' ER medical records per day, 5 days a week. I never read of one incident of death from wild measles virus (MMR is a vaccine to protect from measles) presenting to Children's Hospital of Philadelphia's Emergency Room. On the other hand, there were countless, daily reminders of the pervasiveness of Attention Deficit Hyperactivity Disorder, Autism, Asthma, Diabetes, metabolic and other chronic disorders in this generation of vaccine mutated children."---Disappointed RN, CPC ( NBC's ER PROVOKES VACCINE "REACTION")

- "Out of the 90 children on that list, 24 received a vaccine called Pluserix-MMR manufactured by SmithKline Beecham. It was withdrawn in the UK on the 14th September 1992 because of "reports of mild transient meningitis." "Of the children that received Pluserix-MMR on that list, 3 died (1 after meningitis) , 4 had meningitis symptoms, 5 epilepsy, 5 had become autistic, 1 suffered from rheumatoid arthritis, 1 had severe urticaria and 2 had mumps. 6 had their speech affected - forgetting language skills they had acquired, 1 went deaf. 6 from this time suffered from delayed development and 4 were very very disturbed. One of the deaths was from the Guillain-Barré syndrome - where antibodies are produced that attack the body's own cells . 7 or more suffered frequent fits or convulsions, 1 had terrible screaming fits. Thirteen of the children on that list received Immravax made by the French company, Merieux UK Ltd. This was also withdrawn on the same date and for the same reason as Pluserix-MMR - because of "reports of mild transient meningitis.". Of the children that received Immravax; 6 became epileptic, 1 nearly died from encephalitis, 3 had meningitis, 1 measles and 1 mumps, 5 had speech and communication problems, 3 became slow developers, 7 had frequent fits and convulsions, 2 went into the kind of terrible screaming fits that are associated with brain trauma."---Jani Roberts http://www.gn.apc.org/inquirer/jabs.html


5) http://www.whale.to/vaccine/points.html - The way in which autism developed in children changed after the mid-1980's. (This is around the time the government made vaccines mandatory.) Parents began reporting that their children developed normally during the first year and half and THEN became autistic. It is a fact that most vaccines contain toxic mercury, many of them grossly in excess of EPA permissible standards for ADULTS! (The vaccines are mandatory unless you have a specific reason, such as religion or allergic reactions to the vaccines. But no one in the medical field or within the government makes it known that there is an option, we have to find that out on or own.)
The Autism - Vaccine Connection: Comparison of Characteristics

.................AUTISM...........MERCURY POISONING

Motor Skills Disorders:
......Uncoordinated; clumsiness; .......Uncoordinated; clumsiness; rocking;
......rocking; circling; flaps arms; .....circling; flaps arms; walks on toes;
.....walks on toes; difficulty walking,...difficulty w/walking or sitting; diff-
.....sitting, crawling; difficulty swal-....iculty w/swallowing or chewing
.....lowing or chewing

Sensory Disorders:
....Oversensitive to sound; doesn't ....Oversensitive to sound; doesn't
...like to be touched; abnormal sen- ..like to be touched; abnormal sens-
...sations in mouth, arms, & legs ....ations in mouth, arms, & legs

Speech, Hearing &
Language Development:

...Delayed language or failure to...Loss of speech or failure to deve-
...develop speech; problems w/art-...lop speech; problems w/articula-
...iculation; mild to severe hearing ........tion; mild to severe hearing loss;
...loss; word use errors ..........word retrieval problems

Cognitive Ability:
....Borderline intelligence; mental ...Borderline intelligence; mental
....retardation; poor concentration ....retardation; poor concentration &
....& attention; difficulty following ....attention; difficulty following co-
....complex commands; difficulty ....mplex commands; difficulty w/
....w/word comprehension, difficulty ...word comprehension; difficulty
....w/understanding abstract ideas & ...w/ understanding abstract ideas
....symbols ............ ....................................& symbols

Physical Characteristics &
Functional Disturbances :

...Weakening muscle strength; espe- ...Weakening muscle strength, es-
...cially upper body; rash, dermatitis;...ecially upper body; rash;derma-
...abnormal sweating; poor circulati- ...titis; abnormal sweating; poor
...on & high heart rate; diarrhea, con- ...circulation & high heart rate;
...stipation, abdominal discomfort; ...diarrhea, constipation, abdomin-
...anorexia; seizures; tendency to ...al discomfort & incontinence;
...have allergies & asthma; ....anorexia; seizures

Behavior :
...Difficulty sleeping; staring & unpr- ...Difficulty sleeping; staring &
...ovoked crying; injures self (such as ...unprovoked crying; injures self
...head banging); social isolation ...(such as head banging); social isolation

Visual Problems :
...Poor eye contact; blurred vision ...Poor eye contact; blurred vision


6) With knowing that the two, autism & mercury poisoning, have pretty much the exact same affects on people, I went to the FDA website to see if they still had mercury in vaccines. Supposedly all merury was taken out of vaccines somewhere around the year 2002, due to complaints & concerns of what affects it may have. Turns out, the FDA calls many vaccines "mercury free" when they actually contain "a small trace." I'm not real sure what makes a small trace equal zero in their eyes, it certainly doesn't in mine! Here is the link with the chart showing what vaccines have mercury & which ones don't. Most all of them are listed as "mercury free" but in the column directly next to that it says "small trace." http://www.fda.gov/cber/vaccine/thimerosal.htm#t1

There are a few signs of the onset of autism in those children who are affected by the vaccines but not enough for a "medical diagnosis" of autism before the age of 18 months. (As clearly seen through the facts I just presented, this diagnosis comes after the MMR vaccine, due to the MMR vaccine acting as the fuse to a bomb.) Those children , like Ivan, are still "normal" in most areas, they usually have a few symptons on the autism spectrum but none that can not be reversed w/proper nutrients and therapy(and another reason for Dr. M- we would not have already been in therapy if it wasnt for her). In Ivan's case it was the flapping of his arms, pore muscle tone, gagging on textured foods, failure to thrive(not gaining weight). Not only is Ivan already getting therapy but he is also taking some of the nutrients needed, cod liver oil, B vitamins, & vitamin C. We can already see a difference w/his eating- helps himself to cereal from pantry several times a day- and physical development- he took 2 steps today- and weight gain- gained 1.5 lbs in 4 weeks. He says dog, ooffff (woof), ooo (moo), dada, ba (ball), row (roll), shju shju (ju- ju). It has only been about a month since all this happened! God used me to save Ivan's life! I break down at the thought of how close I came to doing the "norm", the ways of the world, 14 more hours & Ivan would never get the chance to be who God created him to be!

Praise God that he had us do all those pointless tests with the GI Dr. because if I wasn't waiting for the test results I would have been to Ivan's 15 month appointment the 1st week of February instead of the last week of February. God went through great lengths to get my attention before it was too late! Had I not listened to God my little Ivan would never get a fair chance at life. God saved Ivan from being another statistic, one of the unfortunate 1 in 150 (& still rising)! I can't imagine not being able to have all those simple blessings that come with a child. The Bible verse that comes to my mind daily now is Romans 12:2, "Do not conform any longer to the pattern of this world...." This verse has a whole new meaning in my life now!


Monday, February 2, 2009

Ivan is really getting around these days, there is no more sitting still or staying in one room for more than 10 minutes. He is on the go! I expect him to be walking soon, he's getting all the practice in that he needs. Oops, did I say walking? I meant running!



Lil' StinkPot!



Juliana has finally achieved the goal of riding without training wheels! I had to force her to go outside & practice with me 4 different days, she would whine & cry that she didn't want to learn & she didn't care. On the 4th day of practicing a little girl from down the street, named Julia, came riding her 2 wheel bike over to us. That was it, Juliana had competition & she wasn't going to let Julia know she is afraid of riding without mom holding on. Julia began to ride off & Juliana told me to let go, we haven't had to "practice" since. She did it & there is no turning back. Juliana has rode her bike every day consecutively for about 2 weeks now!





Because of Juliana's excitement of riding her bike, Ivan is getting to ride his push car farther than he knew he could. He goes as fast as his legs allow & lets me know that my assistance is not needed.




I caught Juliana dancing to Hannah Montana DVD, in 3-D, at bedtime. The bedtime rule is that her head must be touching the pillow, TV gets turned off if I catch her doing differently. Well, she stuck to the rule alright, but that didn't stop her from practicing her dance moves.






Christmas Time

Christmas with the WHOLE Gibbs Family!

















It was sooooo nice to have everyone together at the same time! I loved it, almost felt like the "old days" but in a better, different way.



Friday, December 19, 2008

SNOW in Slidell!!!

Juliana, Ivan, & I were walking out the door to bring JuJu to school when we were overcome with excitement, SSSSNNNNOOOOOWWWWW! It was really snowing, outside our house, lots of snow the size of cornflakes, the kind of snow that actually sticks to clothing, in Slidell! Juliana immediately ran from under cover, sticking out her tongue to taste the snow while talking about making a snow man & snow angels. Ivan wasn't sure what to think, probably a little overwhelmed by the energy levels Juliana & I were giving off. I quickly rushed us inside to put on more layers of clothing & have Juliana wake up Kendall before the snow is gone, I thought it would only last about 10, minutes at the most. Kendall jumped out of bed & layered up, by this time Ivan is ready for his morning nap. Kendall & Juliana go outside to play in the snow while I'm stuck inside anxiously rocking Ivan to sleep. 8 minutes go by & I place Ivan in his crib, grab my coffee, & head outside to find out it is no longer snowing, just rain & sleet. The 3 of us come inside, JuJu & Kendall change into dry clothes & I take off a few layers. By the time we all sit comfortably to discuss how awesome the snow was, it starts SNOWING again, this time the snow was heavier & had bigger flakes! The race was on, I'm telling JuJu to put on the wet clothes but with dry socks as I pile my layers back on & Kendall is trying his best to pull his wet pants up. We were in utter disbelief, it was soooo cool! After about 20 minutes I cant take the freezing temperature anymore & I come inside to make hot chocolate for my 2 snow bunnies, one of which would rather come in with me as his lips turn purple. Juliana's lips were purple too, & shivering, her jeans were wet up to her knees, her gloves are soaked, she has added a 2nd knit hat b/c the 1st one began to absorb the snow, her scarf & her hair have ice chips in it, & she won't come inside! She says "I'm not coming in until dad makes a snowman with me & there's enough snow to make a snow angel!" Thank God she didn't catch pnemonia! They were able to make a snowman but unfortunately that used up the thin layer of snow from the ground to be used for a snow angel. I don't think I'll ever forget this, it was so exciting & Juliana made it 10 times more exciting. One more thing, it actually snowed about 2 1/2 hrs!

Tasting the snowflakes...



There is no way Juliana will drink her hot chocolate anywhere it isn't snowing on her, & daddy must do the same!


It's quite obvious we don't get much practice building snowmen around here. lol

Thanksgiving Holidays

Aunt Ginger's back in town!!! We were sooo excited to see Aunt Ginger again, it had been 3 very long months. Juliana curled her hair to make it special for Aunt Ginger and she gave her best LSU cheer within 5 minutes of seeing her. I wasn't sure if Ivan would remember her or not, but he without a doubt did. He did a happy jig right as he entered her arms, and she of course gave him one back!




It is considered "high honor" to have Ivan actually open his mouth to eat for you. He won't eat for just anyone ya' know. (lol)


Juliana wasted no time playing hide-n-seek with Uncle Gabe. I think they may have an unspoken rule: within 5 minutes or less of seeing each other it's time to play chase or hide-n-seek.

Daddy's Little Girl

Kendall loves spending time with Juliana, they have so much fun together. She may even get more dates with him then I do! (lol) Juliana especially loves it because she knows how to "work" her daddy, got him wrapped around her little finger! They are really cute together, here are just a few of the photos from some of their dates.


Juliana & Kendall returning home after going to the movies to see Balto in 3D.


This is what I get when I tell them to smile & give me a good picture, to stop goofing off.



Kendall made Juliana a multi-room fort, which she couldn't have been more proud to play in, using shipping boxes from my online christmas shopping :)



Fishing off MawMaw & PopPop's deck.


No catches but Juliana was excited that something had stolen her bait. lol













Monday, November 3, 2008

Ivan's 1st Birthday

WOW! Ivan is already 1 year old!!!! This past year flew by, I can't believe it! Ivan's 1st birthday was spent at home with the 4 of us. He's not really big into lots of noise or groups of people, I thought he would be happier having his party like this. We had fun & I believe he did too, he didn't know exactly what was going on but went along with it anyway.

1 Year Old!


1st taste of the cake.



It may look like he had more than one bite, but don't be fooled, that's just the 1st bite that he spit out all over his mouth! However, he did end up being fed chocolate icecream by Juliana, we know he likes that.


Ivan, & plenty of help, opening his gifts.


Ivan's b-day morning started out early, at 6:30am, for big sister Juliana's soccer game. (Just what he was hoping for, loud cheering fans & cold temperatures outside. LOL!)